From October 2015 to May 2016, over an 8-month period, 65 eligible trauma patients who were admitted to hospitals in three academic centers in mainland Iran were included in this pilot study. Certified registered nurses and neurosurgeons were in charge of data collection, quality verification, and registration.

Sixty-five patients with vertebral column fracture dislocations were registered in the study, of whom 14 (21.5%) patients had evidence of SCI. Mechanisms of injury included mechanical falls in 30 patients (46.2%) and motor vehicle accidents in 29 (44.6%). The case identification rate i.e. clinical and radiographic confirmation of spine and SCI, ranged from 10.0% to 88.9% in different registry centers. The completion rate of all data items was 100%, except for five data elements in patients who could not provide clinical information because of their medical status. Consistency i.e. identification of the same elements by all the registrars, was 100% and accuracy of identification of the same pathology ranged from 66.6% to 100%.

The pilot study showed both the feasibility and acceptable data quality of the NSCIR-IR. However, effective and successful implementation of NSCIR-IR data use requires some modifications such as presence of a dedicated registrar in each center, verification of data by a neurosurgeon, and continuous assessment of patients' neurological status and complications 1).


1)
Naghdi K, Azadmanjir Z, Saadat S, Abedi A, Koohi Habibi S, Derakhshan P, Safdarian M, Abdollah Zadegan S, Amirjamshidi A, Sharif-Alhoseini M, Arab Kheradmand J, Mohammadzadeh M, Zendehdel K, Khazaeipour Z, Hashemi SMR, Saberi H, Karimi Yarandi K, Ketabchi SE, Yousefzadeh-Chabok S, Heidari H, Sotodeh A, Pestei K, Ghodsi Z, Sadeghian F, Noonan V, Benzel EC, Oreilly G, Chapman J, Hagen EM, Fehlings MG, Vaccaro AR, Faghih Jooybari M, Zarei MR, Zafarghandi MR, Salamati P, Nezareh S, Khormali M, Sadeghi-Naini M, Jazayeri SB, Aarabi B, Rahimi-Movaghar V. Feasibility and Data Quality of the National Spinal Cord Injury Registry of Iran (NSCIR-IR): A Pilot Study. Arch Iran Med. 2017 Aug;20(8):494-502. PubMed PMID: 28846013.
  • national_spinal_cord_and_column_injury_registry_of_iran.txt
  • Last modified: 2024/06/07 02:51
  • by 127.0.0.1